Frustration!

The EMG that was done yesterday morning has presented questions about dad having GBS. They have stopped the Plasma Exchange (there is a danger of him getting an infection if he doesn't need the treatment). They plan to do a nerve tissue biopsy and reorder blood tests. The doctors are puzzled and when mom tries to get information she feels she is getting the run around. It seems that right now the doctors have no clue what is wrong. The doctor said that the group of specialists would be gathering together again to discuss how they should proceed. The EMG should have shown that the myland around the nerves were damaged, but it is fine. Instead it is the nerves that are showing damage. If you remember, the Spinal Tap showed very high levels of protien in the spinal fluid. There are different rare infections that could be going on - or it could still be GBS.

To say they are frustrated is an understatement. I didn't even think to ask if dad was able to talk this morning. It could take some time for him to learn how to talk around the tube bypassing the voice box. It will take significant air to push out sound. - But as of right now I have no idea if he is more comfortable or able to communicate.

Missy & Heidi are going to see the folks on Saturday. My family will be traveling after church for the afternoon on Sunday and hope to take mom out for dinner.

Thanks for checking in - If we find out anything - it will get posted!